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International Foundation for Optic Nerve Disease

 
Funding research and disseminating information on causes, prevention and treatment.
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IFOND research | LHON treatment prospects | Mitochondrial Genome Editing | COVID-19 and LHON | LHON talks | Pay it forward | Mitochondrial Regulation | Avoid BAK eye drop preservative, etc. | We experiment with cigarette smoke so you need not. | Viral vector trials | EPI-743 LHON trials | Idebenone LHON trials

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LHON 2017 review

In this most recent LHON review the authors, including one of our Board Members, Dr Patrick Yu-Wai-Man, state:

"The past 5 years have seen a major shift in LHON research to clinical translation and there is renewed hope that the translational gap can be bridged by bringing together scientific communities with different skill sets and fostering greater collaborations with industry, patient-led organizations and national regulatory agencies, which until recently only had a limited understanding of the unique challenges of research into rare diseases. Experimental therapies by their very nature impose a degree of calculated risks on the participants, and the onus is on the physicians and researchers involved to clearly communicate the nature of the intervention being studied, the benefits that are being contemplated, and crucially, the grey areas that will only be answered with long-term follow-up. LHON causes devastating visual loss and the urgent need to develop and validate new treatment strategies should not cloud our judgement that patient safety should always remain the abiding central factor. There will inevitably be set-backs along the way, but the major breakthroughs being achieved in the fields of ocular phenotyping, disease modelling, drug screening and genomic manipulation all point towards a building momentum that will help drive LHON research forward."

IFOND welcomes questions and comments
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The International Foundation for Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
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Email: ifond@aol.com
Web site: http://www.ifond.org/


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The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.