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IFOND research | LHON treatment prospects | Mitochondrial Genome Editing | COVID-19 and LHON | LHON talks | Pay it forward | Mitochondrial Regulation | Avoid BAK eye drop preservative, etc. | We experiment with cigarette smoke so you need not. | Viral vector trials | EPI-743 LHON trials | Idebenone LHON trials
Digests: NEI News | Mitochondrial Disease News LHON | ARVO Journals LHON | PubMed LHON | Europe PMC LHON | MRC-MBU newsPaying it forward
We salute the affected, their families and their supporters who are taking control and
getting on with their lives.
There are no people better placed to deal with a problem than
those actually dealing with the problem. Use a search engine
to find web sites, blogs and social networks of real people dealing with real problems and building community.
Some great examples include:
Ability Village was
built by villagers
in Manipur, Northern India.
Their web site.
Ability Village [USA]. Woman helps her disabled brother and offers help to others:
"This site is dedicated to making the world a more inclusive and accessible place for those with physical and/or cognitive disabilities.
Please take a look at our Disability Assistance Resources page and our Blog for information and inspiration, and be sure to use our Contact form if you’d like to say hello."
Wondermoms.org is a new web site which offers information
and feed back developed by mothers
dealing with their special needs children.
www.girlgoneblind.com is a personal blog from someone with LHON
visionfora.blogspot.com blog
LHON Facebook group
LHON Facebook group
The Hadley School for the Blind
The Hadley School for the Blind information pages
The American Foundation for the Blind
emotional impact support
https://www.lhon.org/living-with-lhon
Web site of young man with LHON
https://www.facebook.com/groups/umdfgroup/
LHON eye society Sweden
LHON eye society Sweden
Anne and Fred Diehl started a small non profit foundation in October 1995 resulting in significant advances in understanding Optic Nerve Disease.
If you know of other groups we should mention, please contact us.
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
Phone/Fax: (845)5348606
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease, est. October 1995.
Copyright 1999-2024, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.