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LHON 2017 state of art | Mitochondrial Regulation | Avoid common eye drop preservative and others | Update 2017 | Update 2016 | LHON talks 2016. | Recent donations. | We experiment with cigarette smoke so you need not. | LHON viral vector trial in progress | Update on EPI-743 LHON treatment trials | "Must view" LHON talks | Idebenone treatment for LHON |
IFOND projects update 2017
The generous support of the donors to IFOND continues to allow important progress in investigations of Leber's Hereditary Optic Neuropathy (LHON). Since 2001 we have sponsored regular annual field trips to rural Brazil in order to study the largest LHON pedigree in the world. These investigations have been fully described in previous reports. They have also led to numerous peer-reviewed publications and Association for Research in Vision and Ophthalmology (ARVO) annual symposium presentations. These investigations and publications have changed the face of LHON as studied, taught and clinically treated. This is an outstanding achievement for the researchers who punch well above their weight on shoe string budgets and volunteer support.
In 2017 IFOND is sponsoring another field study in Brazil organised by Brazilian and international researchers. Doctors Adriana Berezovsky, Solange Salomao, Nivea Cavascan, Arthur Fernandes from UNIFESP, and Dr. Milton Filho-Moraes and his team at the Colatina clinic together with our IFOND scientific board member, Dr Rustum Karanjia will be using objective measures of electrical activity, Phototic Negative Response (PhNR), in vivo as markers of cellular function in LHON and experiments. They hope to establish an ideal protocol of outcome measures against which to test the effects of any purported treatment. See the detailed funding application grant proposal here.
Also, we are sponsoring a retinal biomarker study in Parkinson Disease and Alzheimer disease, both extremely important ailments with relevance to optic neuropathy and mitochondrial dysfunction. The research described here will be done by IFOND Board chair, Dr Ivan Bodis-Wollner MD DSc professor, neurologist, neuroscientist; Piotr Kozlowski MD, professor, neuropathologist; and Sofya Glazman MD research Coordinator.
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The International Foundation for Optic Nerve Disease
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.