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International Foundation for Optic
Nerve Disease |
Please DONATE to IFOND once or regularly to the address above, or click here to JustGive.org.
IFOND's mission is to support research into the
causes, prevention, and treatment of Optic Nerve Disease; and to
disseminate relevant information to health care workers, patients, and
families affected.
IFOND was started by Anne and Fred Diehl when they learned, after visits to many different eye specialists, that the sudden vision loss their 25 year old son experienced was caused by Leber's Hereditary Optic Neuropathy (LHON). The diagnosis was easy once they found doctors familiar with Leber's and with the LHON diagnostic blood test, developed in 1992.
As the Diehls began to inform themselves about LHON, they encountered the excitement among researchers worldwide over progress in understanding the underlying causes of Leber's and other diseases of the optic nerve and nervous system. The Diehls realized the work of a foundation dedicated to optic nerve disease could help move this work forward and help other families afflicted. IFOND was incorporated as a non profit foundation in October, 1995.
IFOND welcomes your support. If you would like to donate time or money to help IFOND please contact us. IFOND has 501(c)(3) status with the IRS, so all donations are tax deductible in the United States of America. Credit card donations can be given on line at JustGive.org.
IFOND Board of Directors
Ivan Bodis-Wollner, MD, D.Sc. (Chair)
Professor, Neurology and Ophthalmology
Downstate Medical School State University of New York, United States of America
Anne and Fred Diehl
Founders of IFOND
Bryan Cebuliak, MD (Web site editor)
General Practitioner
Brisbane, Queensland, Australia
Elaine Cebuliak, BVSc
Veterinary Surgeon and Physician
Brisbane, Queensland, Australia
Olie Westheimer, MA
Charity promoter. Founding board member
Michael J. Moriarty, MBA, CPA
Managing Partner Capital Hospitality Group
Herndon, Virginia, United States of America
John Nolan, CPA
Investment Banker
New York, United States of America
IFOND Scientific Advisors
Alfredo Sadun, MD, PhD
Professor of Neurosurgery and Ophthalmology
Doheny Eye Institute, University of California Los Angeles
Los Angeles, California, United States of America
Jerome Sherman, OD
Professor of Optometry
State College of Optometry,
State University of New York
New York, New York, United States of America
Margaret Wong-Riley, PhD
Professor, Cell Biology, Neurobiology and Anatomy
Medical College of Wisconson
Milwaukee, Wisconsin, United States of America
Stan Schein, MD, PhD
Associate Professor
Department of Psychology, Program in Cognitive Science,
& Program in Neuroscience of the Brain Research Institute
University of California, Los Angeles
Los Angeles, California, United States of America
Valerio Carelli, MD, PhD
Researcher/Assistant Professor, Laboratory of Neurogenetics, Dept. of Neurological Science
University of Bologna
Bologna, Italy
Patrick Yu-Wai-Man, BMedSci, MBBS, PhD, FRCPath, FRCOphth
Wellcome Trust Centre for Mitochondrial Research, Institute of Genetic
Medicine, Newcastle University, United Kingdom
Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, United Kingdom
Department of Clinical Neurosciences, University of Cambridge, United Kingdom
Rustum Karanjia, PhD, MD
Assistant Professor, Ophthalmology, Ottawa Eye Institute and VP Research, Department of Ophthalmology
University of Ottawa, Ottawa, Ontario, Canada
Visiting Researcher, Neuro-Ophthalmology
Doheny Eye Institute, UCLA, Los Angeles, California, United States of America
Chiara La Morgia, MD, PhD
Assistant Professor in Neurology at the IRCCS Institute of Neurological Sciences of Bologna,
Neurology Clinic, Bellaria Hospital, Via Altura 3, 40139, Bologna, Italy;
Department of Biomedical and Neuromotor Sciences (DIBINEM), University of Bologna, Italy
Welcome | Projects | Fundraising | Understanding OND | Ischaemic OND | Toxic OND | Glaucomatous OND | Leber Hereditary Optic Neuropathy | Coping with Blindness | References/Links | Image Gallery | About IFOND | Using this site | Dictionary | HOME
If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address below,
or JustGive.org.
The International Foundation for
Optic Nerve Disease
P. O. Box 777, Cornwall NY 12518, USA.
Phone [g voice]: 6572067250
Email: ifond@aol.com
Web site:
http://www.ifond.org/
IFOND is registered service mark of
The International Foundation for Optic Nerve Disease
Copyright 1999-2017, International Foundation for
Optic Nerve Disease.
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.