Pay it forward | Recent donations | Update December 2017 | LHON 2017 state of art | Mitochondrial Regulation | Avoid common eye drop preservative and others | LHON talks 2016. | We experiment with cigarette smoke so you need not. | LHON viral vector trial in progress | Update on EPI-743 LHON treatment trials | "Must view" LHON talks | Idebenone treatment for LHON |
IFOND's mission is to support research into the causes, prevention, and treatment of Optic Nerve Disease; and to disseminate relevant information to health care workers, patients, and families affected.
IFOND was started by Anne and Fred Diehl when they learned, after visits to many different eye specialists, that the sudden vision loss their 25 year old son experienced was caused by Leber's Hereditary Optic Neuropathy (LHON). The diagnosis was easy once they found doctors familiar with Leber's and with the LHON diagnostic blood test, developed in 1992.
As the Diehls began to inform themselves about LHON, they encountered the excitement among researchers worldwide over progress in understanding the underlying causes of Leber's and other diseases of the optic nerve and nervous system. The Diehls realized the work of a foundation dedicated to optic nerve disease could help move this work forward and help other families afflicted. IFOND was incorporated as a non profit foundation in October, 1995.
IFOND welcomes your support. If you would like to donate time or money to help IFOND please contact us. IFOND has 501(c)(3) status with the IRS, so all donations are tax deductible in the United States of America. Our 2016 tax return is here.
IFOND Board of Directors
Ivan Bodis-Wollner, MD, D.Sc. (Chair)
Anne and Fred Diehl
Bryan Cebuliak, MD (Web site editor)
Elaine Cebuliak, BVSc
Olie Westheimer, MA
Michael J. Moriarty, MBA, CPA
John Nolan, CPA
IFOND Scientific Advisors
Alfredo Sadun, MD, PhD
Jerome Sherman, OD
Margaret Wong-Riley, PhD
Stan Schein, MD, PhD
Valerio Carelli, MD, PhD
Patrick Yu-Wai-Man, BMedSci, MBBS, PhD, FRCPath, FRCOphth
Rustum Karanjia, PhD, MD
Chiara La Morgia, MD, PhD
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If you find this site helpful or IFOND sponsored research worthwhile, please donate to IFOND at the address below.
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IFOND is registered service mark of
The International Foundation for Optic Nerve Disease
The information contained on this website should not be considered medical guidance or professional advice. IFOND is not responsible for errors or omissions in information provided on this site or actions resulting from its use. IFOND does not publish all information from all available sources on optic nerve disease. IFOND is not responsible for the validity of the studies or reviews nor is it an advocate of studies or reviews mentioned on or linked from the IFOND web site. IFOND does not endorse or recommend participation in any particular clinical trial or treatment protocol which may be mentioned on this site. Direct any questions concerning your personal health to your appropriate health care professional.